Cookie Policy
This site uses technical and third-party cookies to perform its services. You can know the details by consulting our privacy policy.
By continuing to browse, you accept the use of cookies; otherwise it is possible to leave the site.
News and events
CATEGORY
METHODOLOGY
TAGS
advocacypatienttoolkit
CREATORS
Share4Rare project.
No previous skills or knowledge. It is meant for anyone who wants to make a difference in his or her rare disease. The first version of the Toolkit was written of the patient advocacy expert partners of the Share4Rare consortium in 2019.
Share4Rare Toolkit for Patient Advocacy
Online tool
This toolkit aims to help people to get started in patient advocacy, to serve as a repository to go back to and has the ambition to provide new material even for experienced advocates.
This is a useful tool for patients and carers with needs connected to rare diseases. Steps: Read it / Use it or share it
Browse through the most frequent issues and questions.